Surgery is just days away!

6 days before original surgery date:

Click. The phone went silent. I just stood there. Deflated. Like a balloon that had a leak. The air slowly streamed out. And suddenly my brain was racing, trying to think of all the people I had to call, all the appointments I would have to change, schedules that needed rearrangement. Because of one word: rescheduled. I admit, my brain had become a bit fuzzy after the man on the phone told me the surgery was rescheduled. But I managed to take away from the conversation that MaryAnne’s neurosurgeon had an unexpected, mandatory . . . thing, come up. And he’d be gone. For three weeks. So we must wait a few weeks longer.

God designed this for our good. “And we know that for those who love God all things work together for good, for those who are called according to his purpose.” Romans 8:28.  Long before MaryAnne was even born God knew that this surgery would be rescheduled. He planned it. The unexpected mandatory thing that came up, was not unexpected to Him. It was His will. And as I look at the positives and negatives of this change I can see the good God worked.

The original date was not good timing for my husband. We sell Christian homeschool material, and the end of August is the beginning of the school year. It is our busiest time of the entire year. And most stressful. The end of September is much slower, less stressful, and overall better.

It is not a negative to have MaryAnne wait another month for the surgery. The neurosurgeon initially told us he likes to do the surgery between the age of 6 months and a year. MaryAnne will be just days shy of 10 months on the new surgery date. So she is still within that time frame. And MaryAnne does not seem to be in any pain or discomfort. She is a very cheerful and active girl!

Fun at the beach!

Fun at the beach!

As a friend so wisely told me, this just means we have four more weeks to pray for MaryAnne and the surgery. Four more weeks to bring her to the throne of God and ask that He show his power and amaze the doctors with a perfect surgery and rapid recovery. I am reminded of Matthew 7:11 “If you then, who are evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask him!” So I pray and ask.

As for the negatives. Emotionally I was ready.  I was ready for it to be over. And the only other negative was that my mom had to reschedule her travel plans out here – plane tickets, time off of work, and all that goes along with it.

So now it is quite apparent that God knows better than me. Which shouldn’t surprise me.

Now we are six days away from the new surgery date. And God’s will is being done. I still find tears streaming down my cheeks when I think of what she will endure, but I know the pain she will endure will be far less than living the rest of her life with uncorrected craniosynostosis. The procedure itself fills me with dread, but I know her future will be superior after it is done. A future that will be a normal, healthy life.

I find myself singing one of my kids Sunday School songs:

My God is so great, so strong and so mighty,
There’s nothing my God cannot do!

Who better to trust than the One who can do all things? I feel joy bubbling up knowing that He is watching over my sweet MaryAnne.  Thy will be done.

Some of MaryAnne's support team.

Some of MaryAnne’s support team.